Here I sit on the eve of another Christmas Day. I have just a small glass of wine for company as hubby, Jim, is watching “Home Alone”. Now that takes a bit of figuring… 1. it’s really not his type of movie… 2. I’ve seen it at least twice… 3. he’d usually rather we watched something together…. mmmmm… oh well, I’ll go with the flow and enjoy some solitude… And, actually, I rather hope you’re not reading this on Christmas Eve or even worse, Christmas Day!! Tomorrow will be different which is why I’m quite content sitting here alone… we will spend the day, or as much of it as we chose, with family and extended family… 18 or so, I think I counted. What is nice is that we can come and go as we chose… eat some, open some prezzies, have a drink or two, come home for some peace and quiet, play some games, eat some more…
But I digress… I was writing about Jim’s and my journey dealing with Non-Hodgkins lymphoma.
If we ever mentioned Jim was not well, or receiving treatment we talked about him having lymphoma, not cancer. I think, then, folk just presumed it was something like diabetes or arthritis, rather than the “big C” – scary! I read the books we were given and checked with Dr Google but we were advised not to spend too much time consulting him as “he” could come across quite negatively.
So life carried on with regular check-ups, more chemotherapy drugs, a bit of radiation here and there and a ” we’ll just go with the flow” attitude. One lot of chemo drugs did promise to leave Jim hair-less but before I shaved his lovely locks he noticed they were falling out of their own accord. He was working in his office one day when things were getting a little stressful. He leant over to his co-worker and said , “This is so bad I could pull my hair out!” as he did indeed do so! And I guess that’s Lesson No 5: Don’t Lose Your Sense of Humour.
And then in 2013 Jim was offered a supposed reprieve – a stem cell transplant. I won’t bore you with details but simply, his bone marrow cells were “harvested” and frozen; he went through a serious course of chemo before being admitted to hospital where his immune system was “killed” and the harvested stem cells then re-introduced into his body. There are plenty of risks in this procedure but we had complete confidence in the hospital staff – and they were in God’s hands!
Now all this happened at the time my Mum passed away back in New Plymouth… and then Christmas was upon us (here in Christchurch) while Jim was having the actual stem cell implant – his own cells implanted back into his body.
So Christmas and New Year 2013/2014 were spent in an isolation room in the hospital… visitors were okay as the room had air constantly passsing through sterilisation but, of course, Jim didn’t feel like “entertaining” anyway so we told minimal people where he was “holidaying”.
Well, it was worth it for a good five years to follow… we hoped!